Jenny Schisler has retinitis pigmentosa. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases. By Jenny Schisler There was recently a viral image of a visually impaired woman using a cane and looking at her phone. In ignorance, the typical person would […]
READ MOREThe Retina Foundation of the Southwest was the first site in the world to enroll patients in a new international Phase III Clinical Treatment Trial for Stargardt Disease sponsored by the clinical-stage ophthalmology company Acucela. This study is a phase III treatment trial to evaluate Acucela’s leading drug candidate, emixustat hydrochloride (“emixustat”), as a treatment […]
READ MOREThere is a great need for more information on the progression of vision loss caused by inherited eye diseases and age-related macular degeneration. The Retina Foundation of the Southwest is beginning a new project aimed at developing sophisticated technology to help manage individuals with eye disease. Scientists in the Retina Foundation have collected a decade’s […]
READ MOREStargardt disease is the most common form of inherited juvenile macular degeneration. Stargardt disease begins in late childhood and may in some cases lead to legal blindness. It affects approximately ten in 10,000 children and adults. There is currently no treatment for Stargardt disease. Over the past few years, the Retina Foundation of the Southwest […]
READ MOREThe Retina Foundation of the Southwest research scientists recently attended the 2018 Association for Research in Vision and Ophthalmology (ARVO) meeting to share and learn about the latest advances in eye and vision research. The week’s presentations covered topics such as gene editing, advances in retinal imaging, and novel drug development. Retina Foundation researchers presented on […]
READ MOREThe first human patient has been administered an AAV-based gene therapy treatment for x-linked retinitis pigmentosa (XLRP). This is an exciting clinical milestone for one of the first potential treatments for this disease. The patient is being followed by Dr. David Birch of the Retina Foundation of the Southwest to evaluate the safety and efficacy of the […]
READ MOREThe Edward C. Fogg, III and Lisbeth A. Fogg Charitable Trust renewed their support for our Texas 1000 Project to identify and genotype 1,000 new patients with retinal degenerative diseases. Since starting this project at the Retina Foundation of the Southwest, a total of 500 patients plus nearly 200 at-risk relatives have been enrolled in the […]
READ MOREMason Two Crow, 22, first came to the Retina Foundation in 2003 with a diagnosis of X-linked retinoschisis, a rare genetic condition affecting the retina. Two years ago he came in for a follow-up appointment where he learned that he had the opportunity to be one of the very first to ever be enrolled in […]
READ MOREThe Retina Foundation has been a large part of a genetic study about Retinitis Pigmentosa (RP) with The University of Texas Health Science Center at Houston (UTHealth) School of Public Health. RP is a rare genetic eye disease that results in night blindness, loss of peripheral vision, and sometimes leads to complete blindness. The study […]
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