Patient Story

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May 24, 2019

What Does “Blindness” Really Mean?

Jenny Schisler has retinitis pigmentosa. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases. By Jenny Schisler There was recently a viral image of a visually impaired woman using a cane and looking at her phone. In ignorance, the typical person would […]

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July 23, 2018

Meet Sharon and Harold Hosack

Sharon and Harold have been married 55 years, and have a loving marriage and happy family with three children and eight grandchildren. Ten years ago, Sharon was diagnosed with age-related macular degeneration, a common eye disease that disrupts central vision. Learning that Dr. Karl Csaky is “one of the world’s experts on macular degeneration”, she […]

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July 11, 2018

Retina Foundation Helps Avery

Avery is a happy and affectionate little girl who has been amazingly brave for a total of twelve surgical procedures. Avery has a syndrome known as CHARGE which has led to a myriad of issues, including poor eye-hand coordination, poor depth perception, lack of balance, and difficulty with simple tasks, such as brushing her hair. […]

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October 10, 2016

The Phyllis G. & William B. Snyder Legacy Society

Nearly seventy-two years ago, Phyllis Snyder’s mother, Rose Lee Gunter, was misdiagnosed as having glaucoma and incorrectly treated by a “horse and buggy” doctor. Fortunately, technology has come a very long way since that time. Researchers at the Retina Foundation use advanced testing equipment that is able to quickly, painlessly, and accurately test patients’ visual […]

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July 8, 2016

Early Detection is Critical for Rare Eye Diseases

Achromatopsia is a rare inherited eye disease characterized by decreased vision (20/200), extreme light sensitivity, and the absence of color vision that affects less than 10,000 Americans. There is no current cure for achromatopsia. However, research on gene therapy is ongoing and may lead to treatment options in the future. The Retina Foundation of the […]

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October 25, 2015

Reading Research Helped Madelyn

(Dallas, TX – October 2015) Amanda knew there was something wrong when at the age of 18 months, Madelyn wasn’t walking yet. “She would step and just stand there. She didn’t know where she was going,” said Amanda. Her thoughts were confirmed when she and her husband took their daughter to the eye doctor who […]

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